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Health/Life Update & Big Windfall

May 21st, 2024 at 02:55 pm

So I've had a lot of large life changes happen over the last few months.

I did get a job at the library one day a week and I love it! Gives me a little spending money and I get a break from my kids and some peace and quiet. The job is super easy and I have a lot of downtime to read or play on my phone or whatever. 

I GOT accepted into the experimental lung procedure for my rare disease! I'm still trying not to get my hopes up, and I don't have a date yet but I'm told likely July. It will require traveling across the country and a two-week (on average) hospital stay. So it's going to be rough. Mentally and healing wise.  A couple weeks after I get home I will get the heart stent placed. I was also told last week that I will still need a lobectomy to remove the dead lung lobe. Bummer. I am hoping to fly for an appointment at the experimental procedure hospital and beg they do it at the same time as the other procedures since they will already be in there. That is what my pulmonologist recommends. Otherwise, it will be another surgery at a later date and I'm told more risky. 

A family friend did a fundraiser for me to help with costs of travel and all the medical bills I've had and will have. The outpouring of generosity from my friends and family was SO HUGE. I am still in shock and awe. Money is still trickling in but I think the total is somewhere around $26k!! That is nearly half of our income for the whole year!

So far I have paid off our last couple medical loans and refilled our buffers which we drained to pay for medical bills this year. The rest will just sit in a high yield savings account until after my surgery. I am hoping to be wise and frugal with the money and really use it to make a difference in our lives. But with medical costs unknown I don't want to touch it until that is all squared away. 

6 Responses to “Health/Life Update & Big Windfall”

  1. LivingAlmostLarge Says:
    1716305367

    Congratulations and wow what a blessing!

  2. Brunette Says:
    1716314996

    Congrats on making it into the trial. I hope you get the results you are hoping for!

  3. PatientSaver Says:
    1716993114

    Congrats on the library job; I always thought that would be a fun job, too.

    So glad that paying for medical bills will not be a burden to you as you face some difficult health challenges. Very best wishes to you on your future procedures.

  4. Dido Says:
    1717118438

    Enjoy the library job and I'm glad that you have a good start on paying off the anticipated medical bills. Best of luck as you go through the procedures! I hope you can work the timing out to your preference.

  5. ceejay74 Says:
    1717869366

    Very happy to see all these positive updates!!

  6. rob62521 Says:
    1718309180

    Wow, lots of changes. Glad about the trial and hope it works out. Glad good things are happening!

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