Home > Bad Days

Bad Days

January 14th, 2016 at 04:09 pm

Well in a bad turn of events I had to go to the ER on Sunday night after battling with severe chest pain for several days, and fighting with my lung disease for the past couple months. The night before we had to leave husband's work party early which I had looked forward to all year.

I was in so much pain I thought I collapsed my lung (I've done it a couple times before) but was surprised to find that I was very very sick with pneumonia, caused by my lung disease. They couldn't believe I was up walking, going shopping, and pretty functional.

I thought I had coughed out my lung disease last week, but apparently that was just a small part of it and I had been building up a large infection for who knows how long, which is probably why I've been feeling so poorly for a while now.

My white blood count was over 30,000. And 4 days later, I'm still here and really no progress. Frown I have a huge phobia of needles and hospitals, and I am still in a lot of pain. I get lab work everyday, and my mother has been coming to hold my hand at 4:30am every morning while they do it. I have terrible veins besides that and they are running out of places to stick. Husband has been sleeping in a chair next to me, and then leaving for work daily and I am extremely bored and lonely.

It stinks because my lung disease is basically a plug which I can't cough up, and it's trapped the infection down below it. So I'm not going to get better until I cough it up, which can take me weeks or months to do. So right now it's a waiting game. I'm getting around the clock breathing treatments which aren't working, and there really isn't much they can do at this time besides hope by some miracle I can dislodge it. Of course my lungs are already so sore and tired. Feeling very discouraged. Even if I do cough it up it will just come back in a couple weeks. I'm just tired of dealing with the constant pain, breathing problems, and coughing.

They are now mentioning removing part of my lung, to possibly keep it from coming back. But not enough cases on it to know if it would even work or just make it worse.

Keep me in your thoughts and prayers. I'm not sure how money is going to go, since I'm not really able to work at this time. Just trying to make it through each day.

20 Responses to “Bad Days”

  1. creditcardfree Says:

    Oh, my. I'm so very, very sorry that you are in pain and so ill. You have my prayers. I'm going to light a candle today for you as a reminder.

    I don't like needles either. I make them use a butterfly needle on me every time I get blood drawn, so they don't have to stick me over and over. I hope they might be doing something similar for you.


  2. Ima saver Says:

    Bless your heart sweetie, I am so sorry to hear this. I will think about you every day and keep you in my prayers too. Please get better quickly!!

  3. bluesfemme Says:

    On klarose that's tough. I know how weary and exhausted and just down I get from chest infections and bronchitis, so really feel for you with having to put up with so much more. Visualising thoughts of strength and forebearance for you.

  4. Carol Says:

    I'm so sorry! Sending hugs and caring thoughts! (( ))

  5. CB in the City Says:

    Oh, you poor dear. I have had a collapsed lung along with pneumonia so I know a little bit about what you are going through. And I am also a "bad stick." Your friends here care about you! Try to gather strength from that. And visualize just BLASTING that plug away. Can't hurt.

  6. Petunia 100 Says:

    I am so sorry to hear this. It sounds very miserable.

    I am thinking positive thoughts for you. I hope you will feel much better very soon.

  7. Rachael777 Says:

    just saying prayers.. hang in there. you are strong woman to have gotten this far.

  8. Laura S. Says:

    I hope things take a turn for the better soon. Thinking of you.

  9. Livingalmostlarge Says:

    Best wishes for a speedy recovery

  10. MonkeyMama Says:

    I am very sorry to hear. Rest up and take care! I like CB's suggestion too.

  11. VS_ozgirl Says:

    So very very sorry to hear about the trouble you're having! I hope you don't have to have part of your lung cut away, wishing you all the best and a speedy recovery xx

  12. FrugalTexan75 Says:

    I'm sorry to hear you're going through this. Praying!

  13. LuckyRobin Says:

    That's horrible. Hope you cough it out soon.

  14. debt-free by thir-ty Says:

    So sorry to hear you're going through this! Sending lots of prayers your way.

  15. Xtreme Thunder Says:

    I know how you feel regarding conditions that affect the Lungs, especially the currently incurable type. Sounds pretty close to what myself and 30,000 other people in the U.S.A. are dealing with. Good days and bad days for sure. Feel better soon!

  16. ceejay74 Says:

    I am so sorry to hear that. :-( Very glad that you have such a devoted mother and loving husband, and you'll figure out the money stuff, but no one should have to go through this kind of suffering, especially so young.

  17. NJDebbie Says:

    Wishing you a speedy recovery. ((Hugs))

  18. PatientSaver Says:

    I am so sorry to hear this. It sounds like a lot to go through.

    If it is hard to cough this up, would you consider meditation and guided imagery? Both are wonderful for calming your nerves so if for nothing else it could alleviate the stress you are feeling, which is slowing your recovery. The guided imagery could help you cough up what you need to cough up.

    Your doctor may not have all the answers, beyond surgery and medication. Sometimes, we have to search for the truth and what's right for us.

    As for needles, I can understand how you feel. I've been on a self-injectable drug for my MS since January 1, 2000. Having to inject myself felt, at the time, like one of the hardest things I'd ever done. Because I felt like I was hurting myself by sticking a needle in me. I had to change the way I thought about it and remind myself, over and over again, that the medication I was getting was healing and was going to make me well.

    Please check out some guided imagery CS or tapes from the library. I also used these when I was preparing to have abdonominal surgery. It helps you practice putting yourself in a state of calm and tranquility by vividly imagining a special place where you feel peaceful and still.

  19. creditcardfree Says:

    Nice advice, Patient Saver. I'm a big fan of guided medication.

  20. alice4now Says:

    So sorry you are going through all of this, thoughts and prayers for healing and health coming your way. The money will work itself out, you need to focus on getting better.

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